Monday, March 9, 2009

AN AMAZING LADY

I WANT TO SHARE THIS STORY WITH MY FRIENDS. THESE EMAILS ARE FROM A LADY I MET A FEW YEARS AGO THROUGH "GOATS". SHE IS A RETIRED "NEO-NATAL NURSE". SHE CANNOT STAND SITTING AROUND DOING NOTHING. SHE SAID 'SHE JUST HAS TO TAKE CARE OF SOMEONE". SHE LOST HER GOATS IN THE ORDWAY FIRES LAST YEAR. ALONG WITH GOATS SHE HAS TAKEN IN SOME FOSTER CHILDREN WITH SPECIAL NEEDS. ALL WE HEAR IS THE BAD STUFF IN THE NEWS, I THOUGHT YOU MIGHT ENJOY HEARING SOME OF THE GOOD STUFF ABOUT THESE ABUSED CHILDREN.
SHERI
PS: I CANNOT GET THE STORY OF THE SECOND CHILD ON HERE, SO AM MAKING A DIFFERNT BLOG...PART 2, TO TELL ABOUT THE SECOND CHILD SHE TAKE CARE OF.
--------------------------------------------------------------------------------------------
For all who know of Geremiah's journey, here is a much overdue update. He's walking all the time. Most of the time he wears a brace on his rt. leg to help prevent the over-extention of his knee. Tries to run but because of balance issues & depth perception, takes a lot of bumps & tumbles but NEVER gives up. He has his new wheelchair & keeps it at school for safety on the playground & to learn to use his affected Rt arm/hand to propel himself in it.

We have started using Constraint Induced therapy to help his Rt arm catch up to the progress of his right leg. He's very cooperative with this & spends a lot more time trying to use his affected hand & arm. (I began this after reading "The Brain That Changes Itself" by Norman Doidge, MD. It is all about the latest knowledge of Neuroplasticity. Geremiah is certainly a poster boy for Neuroplasticity! )

His recent vision exam shows no change in the extreme damage done to his optic nerves & retinae. He still sees with only one part of one eye but his brain has greatly improved its processing of what he sees & he recently tested 20/270 instead of the previous "Legally Blind" 20/400. He loves to "read" his own books. He sees things to "get into" & keeps me constantly on the lookout for his latest exploration. He can see horses, trees & buildings that are at least 100 ft away. Another testament to the effect of Independent Mobility on Neuroplasticity. (Two of the pics are of his 1st venture on his own 100 ft from the house to the swing set & back.)

His speech therapy is progressing well but he is still much more limited in his expressive ability than he is in comprehension. He is age-appropriate in his ability to understand & follow directions & to remember people/places/things, but developmentally functions more at a 2 y.o. level. His 5 yr old brother, Giovanni, stays with us at least 2 weekends/month & is becoming very self-confident in the rugged "ranch life-style!"

DHS is still moving as rapidly as possible toward reunification with his mother, her 8 mo old son, her current live-in male friend & his 6 y.o. son.

Following is the news article of the abuser's plea bargain. I am preparing a Victim Impact Statement for the sentencing hearing & have also requested to speak to the judge on Geremiah's behalf at that hearing. Regardless of Geremiah's incredible progress & will to be typical, his sentence is for life. My anger lies in the reality that all of his disabilities were preventable & unnecessary. No amount of prison time served by his abuser will lessen the impact of that abuse on this child's life!

Thank you for your moral support & prayers on behalf of Geremiah & his brother, Giovanni. It means more than you can know. Lynne

------------------------------------------------------------------------------

Published: February 26, 2009 03:10 am |
Child-abuse suspect ordered to stand trial
Jeromy Michael Pirraglia charged in 2007 incident in which a 2-year-old
Canon City boy was severely injured.

By TRACY HARMON
THE PUEBLO CHIEFTAIN


CANON CITY - A judge on Wednesday found enough evidence to hold a 32-year-old man for trial on a felony child abuse charge.

Jeromy Michael Pirraglia is charged with a single child abuse count relating to an Oct. 17, 2007, incident during which police were called to the 700 block of Piedra on the report of a 2-year-old boy who was not breathing.

The child sustained a serious head injury and was treated at a local hospital before being taken to a Colorado Springs hospital for emergency surgery.

Dr. Paul Grabb, a pediatric neurosurgeon testified Wednesday that he "took off a bone flap and left the bone out to allow the brain to swell rather than push inward and cause pressure that could kill the child." "I certainly remember it was no accidental trauma - it was obvious. A fall down the stairs would not cause an injury serious enough to cause me to do what I did," Grabb testified.

"It was an injury similar to falling out a window, two to three stories, and landing on concrete. Significant force is necessary," Grabb said.

Grabb said a kick is a possible scenario for the injury. In earlier testimony, police Detective Jeff Worley testified the boy's 4-year-old brother said Pirraglia kicked his brother in the head and caused him to fall down the stairs.

The young boy demonstrated the alleged kick with a teddy bear which Worley described as a mule kick, or a backward directed kick, to the back of the boy's head.

Pirraglia was held for trial following the hearing after Fremont County District Judge David Thorson said there was enough evidence to find probable cause that Pirraglia caused the injury to the boy. A pretrial motions hearing was slated for Oct. 23 during which defense attorney Magdalena Rosa will argue a motion calling into question the competency of the young witness, the injured boy's brother.

Grabb did tell the court the injured boy is able to walk with assistance, is very weak on the the right side, his right hand does not work well and he is able to communicate in a rudimentary fashion.

"He is damaged but alive," Grabb said, confirming that the damage will be lifelong.

Pirraglia remains held at the Fremont County jail on a $100,000 bond.

-----------------------------------------------------------------------------

Published: February 27, 2009 02:48 am |
Canon City abuse suspect takes felony plea bargain
Two-year-old boy suffered severe injuries in 2007 incident.

By TRACY HARMON
THE PUEBLO CHIEFTAIN


CANON CITY - A 32-year-old man pleaded guilty Wednesday to a felony child abuse charge connected with an October 2007 incident that left a 2-year-old boy permanently damaged.

Jeromy Michael Pirraglia pleaded guilty to child abuse, admitting he knowingly or recklessly caused serious bodily injury to the boy who was the son of Pirraglia's then live-in girlfriend.

The charge relates to a Oct. 17, 2007, incident during which police were called to a home on the report of a 2-year-old boy who was not breathing. The child sustained a serious head injury and survived emergency surgery to remove a portion of his skull.

According to Dr. Paul Grabb, who performed the surgery and testified about the boy's condition during an earlier court proceeding, the victim is able to walk with assistance, is very weak on his right side, his right hand does not work well and he is able to communicate only in a rudimentary fashion. The boy's brother, who was 4 at the time and reportedly witnessed the attack, told police Pirraglia had kicked his brother in the head.

District Judge David Thorson told Pirraglia the possible penalty for the crime is four to 32 years because it is an extraordinary risk crime. The plea agreement calls for a stipulated 16-year sentence.

Pirraglia will return to court April 8 for sentencing. He remains held at the Fremont County jail on a $100,000 bond.
1 Talking to Troy.jpg
47K View Download
2 Walking away.jpg
45K View Download
3 Waving with affected Rt hand.jpg
34K View Download
3.5 Climbing on his own.jpg
47K View Download
4 Reading 1.jpg
40K View Download
4.5 Reading 2.jpg
39K View Download
5 Reading 3.jpg
40K View Download
6 Power nap.jpg
56K View Download
7 Independent Mobility!.jpg
46K View Download
8 He made it that far on his own!.jpg
38K View Download
9 Miah at the Bonfire.jpg
60K View Download
9.5 Gio & Miah at the Bonfire.jpg
51K View Download
10 Partners in crime.jpg
47K View Download
11 Miah contemplating.jpg
52K View Download
11.5 the Jokester.jpg
26K View Download
12 Geremiah 1 yr later!.jpg
37K View Download

AN AMAZING LADY PART 2

It's way past time to update you about my second baby. I'm not sure what I've told whom so I'll just start from the beginning.

In May I could see that Geremiah was becoming an "only child" & needed someone to share time & attention. In July I got my 2nd brain injured baby. Shylah was 4 mo old, a preemie, SGA (Small for Gestational Age) at 33 weeks/1000gm twin w/short cord, TE fistula/Esophogeal atresia & bad reflux. I had her because 6 wk after her discharge from NICU she suffered a Non Accidental Traumatic Brain Injury. It was deemed Shaken Baby as she had a fractured skull, 2 leg fractures & liquifaction of the brain, but the story & facts were conflicting. Her twin brother & 2 y.o. sister were placed with the Maternal Grandmother & Shylah was placed with me. After months of police investigation, no charges were ever filed.

She had never attached to anyone; her vision was questionable, she didn't vocalize & when disturbed cried intensly with not normal differentiation. She was on Phenobarb for seizures she had after the injury. She weighed 8.5 lb & ate 2 oz every 3 hours. This stay-at-home grandma soon became sleep deprived. All this was compounded by her severe reflux. In spite of medication, she had many painful regurgitations.

In Sept she began to tell me she was "drowning" when she took her bottle & finally just quit eating. Her atresia repair had constricted & she needed dilation. After that I gavaged her for 2 1/2 mo. until she was big enough for G tube w.Nissan wrap. During this time she began having episodes of abdominal pain so severe it doubled her up so violently she could nearly through herself out of my arms. Then they realized that her tracheoesophogeal fistula had been so low on the esophogus that a wrap might preclude her ever being able to swallow even her own secretions so they went with a Jejunostomy (for continuous feeds) & a gastrostomy for meds. That happened Dec 19 thru Christmas. During that surgery they discovered she had multiple ulcers in her stomach which explained her violent pain. I'm treating her with Carafate & it has given her great relief.

(Her feedings are continuous for at least 20 hr/day & with occasional pain & nausea meds, we both sleep well at noc.)

Then in Feb her J tube became terribly infected & required a rest thus switching her feeding to the gastrostomy & setting her up again for reflux. That lasted a week & just as I was ready to switch back to the J tube, it literally fell out! It had healed over inside during the "rest" & I was unable to insert a temporary Foley cath SO ended up in hospital 2/6 for a transgastric jejunal feeding tube inserted into stomach then on thru to jejunum & on into the small intestine. It's about 12 in. long total.

This worked great after spending 3 days in hospital with her constant emesis of secretions that wouldn't pass out of the lower esophogus.
She's very strong & has protected her airway thru all this but I never let her out of my earshot in case she chokes or needs suctioning.

THEN, in spite of my great precautions to prevent her tube accidentally being pulled out, yesterday I was lowering her into the bathtub, free of all my wraps to prevent tugging & caught the tube between tub & me & yanked it out, complete with bulb still inflated. Thought I would die! I inserted a small gastrostomy tube the Dr had given me in the event of just this sort of accident & now am feeding her again through the stomach until they can schedule her for replacement of the GJ tube.

I've been asked if it makes me feel old or young to be so busy? It is making me strong & hasn't killed me. I do feel much younger than I look or am. (68 yr last mo.) I never got to be a stay at home mom & I love being a stay at home grandma.

I'm learning so much about neuroplasticity & have the satisfaction of coordinating both Geremiah's & Shylah's care & therapy. We have great therapists & we all work together so well. I'm just anxious for Shylah to get past her birth issues so we can focus entirely on her brain repair. My "handbook" is "The Brain That Changes Itself" by Norman Doidge, MD. It's so well written that it's hard to put down and covers every age & every kind of brain condition. I've given one to every therapist who touches my children, including their Pediatrician!

In spite of all her abdominal issues, she has progress remarkably. She definitely sees. Her brain injury was on the right side & in the beginning she would only look to the right. She now looks past midline to the left, moves both legs equally & is doing better with her left arm. She puts her rt. fist into her mouth & is begining to make attempts at reaching for things. I've started patching her left eye 2 hr/day to correct mild amblyopia in her rt. eye. She now vocalizes & responds with social smiles. Her cry is differentiated & appropriate in expressing her needs.

Colorado School for Deaf & Blind send a therapist twice monthly. They built her a "Little Room" that is decorated just for her to let her discover things on her own. It is 30" X 30" X 30" & closed on top & 3 sides. This also allows her to hear her own voice. She loves it & spends 2-3 hours at a time there. It is in my combination Sewing Room/Office/Play Room so I can be with both Geremiah & Shylah & still occasionally make a quilt (or pay bills.)

At 1st I took her to Pueblo 3 times/wk for supervised parental visits but because of her many issues it has been approved for her parents & grandparents to visit her in my home twice weekly. This is much easier on both of us & gives me a lot of opportunity to teach Mom what I'm doing with her.

I'm comfortable with the likelihood she will eventually be reunited with her family but it will not be until she is medically stable. I'm just hoping for sufficient time to work with her neurological rehab. I think she has great potential.

As you might guess, she & I are very attached. She follows my voice & responds to my efforts to comfort her. The only person who has ventured to watch her for a few hours is Tracye. We've probably been apart only 10 hours plus the hours she has spent in surgery. She goes everywhere with me. She's been to Oklahoma, 2 weddings & Mom's funeral & many restaurants.

She now weighs 20 lbs & has 2 teeth!

She is very good for Tanner, Tehya, Giovanni & Geremiah. They all beg to hold her & try to interact with her. It has been good for her...she's accustomed to noise of little children! Whenever Geremiah hears her crying or sees me comforting her he asks, "Owwy?" He understands & is remarkably patient when I say, "I have to go take care of the baby. I'll be right back." He usually tags along to watch.

I apologize for so much information but now you know why I've not even had time to check my e-mail let alone flood you with pictures as I did with Geremiah. Hopefully that is changing.

If I've repeated information you already knew it's because I've slept since the last time I talked to you.

Much love, Lynne
0.5 Shylah & Stellaluna.jpg
59K View Download
1 PreOp 12192008.jpg
47K View Download
2 PostOp Miserable!.jpg
67K View Download
2.5 Christmas in Hospital.jpg
84K View Download
3 Christmas Day in Hospital.jpg
65K View Download

4
5 Tummy-down time.jpg
89K View Download
6 Giovanni talking to Shylah.jpg
58K View Download
7 Shylah & twin, Joseph.jpg
66K View Download
8 Shylah's big sister.jpg
71K View Download
9 Check the cat!.jpg
69K View Download
10 Nap time.jpg
70K View Download


12 This is not fun!.jpg
45K View Download
13 Giovanni's such a good brother.jpg
57K View Download
15 doubled up in pain.jpg
6K View Download
14 This is hard!.jpg
45K View Download
16 Goin' to the Bonfire..jpg
46K View Download
17 Shylah's 1st Bonfire!.jpg
57K View Download
18 Tanner & Gio tending fire.jpg
53K View Download